Our family participates in the Love Some1 with Glut1 annual fundraising campaign for many reasons:
1. The Glut1 Deficiency Foundations is able to attend various medical conferences because of generous donations made. The more exposure Glut1 receives, the better chance for a quicker diagnosis for families who are searching. We don't want other families to have to wait 7 YEARS like we had to.
2. The biennial family conferences give our family the opportunity to meet, share, and learn with other families and the doctors and researchers who do so much for the Glut1 community. Having the chance to spend time with our Glut1 family is priceless! Reece gets to be around other Glut1 kids who have to weigh out their food and consume high amounts of fat, just like he does. The conferences also give him the opportunity to be around kids who experience the same types of symptoms that he endures.
3. Research Grants - The Glut1 Deficiency Foundation awards research grants annually to help further the treatment of Glut1 and to hopefully find a cure.
We are so grateful to all of the friends and family who have supported our annual fundraising efforts. Your generosity has given both help and hope to the entire Glut1 Deficiency community!
Reece is . . .
WE LOVE SOME1 WITH GLUT1!
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
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