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Drew" fund raising page for his RARE DISEASE

by DREW Hemlock

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation

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Campaign has ended.

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Thank you!  Thank you for taking the time to read

and to consider donating to Drew's RARE DISEASE Foundation.

    Drew is now 35 years old and we have known he has Glucose Transporter Protein Deficiency (Glut1 for short or in medical terminaology G1D) since he was 16 years old.  It was so wonderful to have a name for his disability.. but then came the realization back in 1996 that hardly anyone outside of the research communities had heard of this.  He was the 24th case identified in the world at that time.

     This was before the internet and we were still using rotary dial phones ,  One day I received a call from a mom in Chicago who wanted  to meet other families with Glut 1.  She went on to organize our first family Conference in Chicago with 9 other families and the research teams.  This is how our foundation started.  Families trying to understand a RARE DISEASE.  Today we have a Volunteer Board ,a Medical Review Panel and parents who advocate for our kiddos.  Our grass root can do attitude has helped  other families start foundations across the

WORLD.!! So exciting to see the word spread and kids getting diagnosed at such early ages giving families such HOPE for a good outcome. 

     Drew has been on a research study using an oil that breaks down to ketones that the body can then use as alternative to glucose.   We and He are so happy with the life he is able to have as an adult.  Thirty years ago we were anticipating having to care for him 24/7.  Today with minimal assistance he has a full, active, and happy LIFESTYLE.  For our family this research has been such a Blessing.   If you would like to know more about our foundation (Drew is at the 3:32 mark)or what Glut1 is please click the videos below.   THANK YOU for reading, thank you for donating, thank you for praying for Drew and all the other families. 

    


The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.


Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.


learn more about love

messages from the heart of our community





learn more about Glut1 Deficiency

our new video to help raise awareness and improve education


please visit our website for more information

www.G1DFoundation.org



How would you like to support?

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