Theodore Proett

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation



Hi, everyone.

Every year I help raise money for the Glut 1 Deficiency Foundation.  Please consider making a donation that will help support the work of researchers and doctors who are trying to help me and kids like me with Glut 1 Deficiency Syndrome.

This past year had big changes for me.  I graduated from high school last spring, and entered my school district's transition program in the fall.  The program teaches me and my friends independence and real world skills.  We navigate public transportation, visit different places in the community, do volunteer work and, later, have the opportunity to work in paid jobs.  Right now I am working as a volunteer in the cafeteria of Littleton Hospital and also at a local church.  We have a few classes too, but they concentrate on practical life skills, mostly.  I like transition a lot more than I liked high school, because it is much more easy going and they try to develop our social skills, which to me means more time hanging out and talking with my friends! 

I am lucky that my Glut 1 Deficiency was diagnosed and is treated.  If I had never been diagnosed, or if there were no treatments, my life might be a very different story.  I might have been confined to a wheel chair or had lots of seizures which could have prevented me from taking advantage of many of the opportunities that I have through transition.  But not all kids with Glut 1 are as lucky as I am.  I was eleven when I was diagnosed, but some kids never get diagnosed.  Other kids are diagnosed, but are still in wheel chairs or have bad seizures.  Today's treatments just don't work for them.  Your support of the Love Some1 with Glut 1 campaign helps more doctors become aware of Glut 1, helps more kids get diagnosed, helps the researchers who are looking for better treatments and a cure, and helps more Glut 1 kids get lucky like I am!

Theo Proett

P.S.  Check out my sister's movie about my lucky life, below!

The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.

learn more about love

messages from the heart of our community

learn more about Glut1 Deficiency

our new video to help raise awareness and improve education

please visit our website for more information

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