Gordon has had his Glut1 diagnosis for less than a year. The Glut1 Deficiency Foundation has been a wealth of knowledge and support for us as we navigate this journey with our amazing sunshiney boy. Gordon is not so unique in the world as there is a whole community of incredibly determined and resilient folks out there chasing their potential despite this disorder. There are even more of us who love some1 with Glut1. ❤️
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information