Daniel's Love Some1 with Glut1 2020 Fundraiser

by Kristan Livingston

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation



Daniel was diagnosed with Glut1 Deficiency in September 2004.  It had been a long, frustrating journey to diagnosis for us, though thankfully not nearly as long as it could have been and has been for many others.  Even with a diagnosis, we felt very alone, as Daniel was about the 40th person in the world diagnosed with Glut1.  What a relief to begin meeting annually (and now biannually) with other families in 2009.  The support of this group and its commitment to research and education have been invaluable.  Please consider contributing to this remarkable organization.  Every dime goes to the cause.  How we hope and pray for a cure.... and better treatments in the meantime.  Thank you.

The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.

learn more about love

messages from the heart of our community

learn more about Glut1 Deficiency

our new video to help raise awareness and improve education

please visit our website for more information

How would you like to support?