Coins for Carly Fundraiser for Retinoblastoma

Carlene has been discharged after being inpatient for 31 days to complete the stem cell harvest transplant process. She is currently 33 days post-transplant. She is now working on the 100 days of isolation outpatient to give her white blood cells the opportunity to grow new bone marrow and for her immune system to gain full function. We visit the clinic twice weekly for lab tests and transfusions if necessary. Keeping Carly occupied while in isolation is a challenge, but we are taking it in stride. 

Last week's clinic visits included an MRI scan to assess any potential tumor activity, post-transplant. There are a few spots in the bone around the left orbit where the tumor and eye were removed. Based on the metastasis in the bone, the transplant doctor informed us that Carlene is considered to be in "partial" remission at this time. In our meeting with the neuro-oncology team, Dr. Dunkel expressed that the results of the MRI scan will determine what, if any, additional treatment will be necessary.

Find links to follow Carlene’s journey or show your support at www.linktr.ee/coinsforcarly or on all social media with the handle @coinsforcarly. This week's social media updates include new pictures and videos on Instagram, Facebook, and TikTok.

We have come a long way, but still have a ways to go yet. Thank you for all of the gifts, donations, and continued support.