Team Thrive- Cure for Gemma

by Team Thrive - Cure for Gemma



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Gemma was born seemingly perfect and healthy on June 10, 2018. After her first birthday, there was a growing concern of developmental delays and quirky behavior. She suddenly lost interest in her toys, books and began to lose eye contact. The words she had learned to speak and the baby sign language she loved to use, suddenly vanished. After several tests and appointments with specialists, Gemma was diagnosed with Rett Syndrome on March 25, 2020. Rett Syndrome is a rare neurological condition caused by a random mutation in a gene called MECP2. It has a devastating impact in nearly every aspect of life: loss of purposeful hand function, the ability to speak, walk, eat and even breathe easily. Despite her challenges, Gemma remains joyful and has an incredibly bright spirit. She communicates with her eyes and body language. She is obsessed with music, loves to eat, and enjoys spending time with her family at the beach. Her condition doesn’t allow her body to cooperate with her mind, but her resiliency inspires us to fight for a cure. Research has proven Rett to be reversible in animal models. We know a cure is possible and we will continue to help make it a reality for Gemma and others that battle this rare condition.